Gina and Jarret Young, residents of Southern Indiana, did not anticipate any issues with their newborn daughter’s well-being.
Only two days old, Willow ceased eating, turned sluggish, and ultimately became unresponsive.
Support kami, ada hadiah spesial untuk anda.
Klik di sini: https://indonesiacrowd.com/support-bonus/
“She was having a seizure, and she was placed on a ventilator,” said Jarret.
Doctors at Norton Children’s HospitalIn Louisville, Kentucky, approximately 11 miles from their home in Sellersburg, Indiana, they quickly carried out tests. They found out that Willow had Citrullinemia, a rare genetic disorder that stops the body from effectively eliminating ammonia, a harmful substance produced when proteins are broken down. If not treated, this condition can be dangerous.
Jared and I, without realizing it, were both carriers of,” Gina said. “We have a very healthy two-and-a-half-year-old who has never even had a fever in his entire life. Discovering this was a huge shock because we had no idea.
Support us — there's a special gift for you.
Click here: https://indonesiacrowd.com/support-bonus/
Willow’s elevated ammonia levels led to seizures, leaving her in a critical condition in the NICU for 40 days. Her parents are deeply moved by their daughter’s strength.
“She doesn’t need to be strong, but just her strength and the ability to go through that—or, you know, just be a baby through it—and the resilience she demonstrated has truly moved many people,” Gina said.
The Youngs wish that by telling their experience, they can assist another family facing a comparable situation.
“If something feels wrong, it likely is. Even in situations like this or any other scenario, trust your instincts. We are given that as parents,” Gina said.
Willow was eligible for a kidney transplant. Her father, Jarret, discovered he was a compatible match and has become her living donor.
READ MORE:Parents reveal their daughter’s struggle with a rare genetic condition to increase public awareness
